How do people labelled with intellectual disabilities experiencing care in the developmental services sector define person-centered care?
The purpose of this project is to understand what person-centered planning and care means to people labelled with intellectual disabilities experiencing care in the developmental services sector. If we are able to question labels of intellectual disability, celebrate body-mind difference; desire disability, neurodivergence, and disabled/neurodiverse futures, how will the western industrial complex of care exist (or cease to exist)? What can replace it? This is intended to be an emancipatory research project, one of the key elements of which is the “oppressed” group gaining power in the research process (Garbutt, 2009). People labelled with intellectual disabilities whose collective, intersectional experience of care is absent in scholarship and public policy, and who are barriered from access to the academy and governance, might use this project to make their experiences of, and desires for, care known. The Meta Center will gain the opportunity to set benchmarks for care and service provision, defined and determined by their clients.