Self-sovereign identity data of persons living with dementia at risk of getting lost: how can personal data be protected, owned by individuals, and used to keep dementia clients safe, and inform research and policy?

Three out of five Canadians with dementia wander, raising concern as to how it can be managed. Current information describing best practices to find missing persons living with dementia however, is inconsistent and can cause police difficulty in choosing search and rescue strategies for this population. The purpose of this project is to develop and promote the exchange of best practices to quickly find a lost person with dementia through the development of a guideline. It will involve a literature review and surveys with police across Ontario. The information collected from these two activities will be used to develop the anticipated guideline. The Alzheimer Society of Ontario wants to be a leader, enhancing the reputation of the Finding Your Way program, and reduce the risk of people with dementia going missing. Partnering with researchers, such as the intern, to have credibility and have police partnerships will help make that happen.

Intern: 
Noelannah Neubauer
Faculty Supervisor: 
Paul Stolee;Lili Liu
Province: 
Ontario
Partner: 
Partner University: 
Program: