Identifying and Prioritizing Difficult Systemic Sclerosis Health Care Decisions to Inform the Development of Patient Decision Aids

When faced with complicated treatment decisions, patients and health care providers can use patient decision aids to gain information about options and potential outcomes. Treatment for rare autoimmune diseases like systemic sclerosis can be overwhelming as there may be more than one treatment option, without one being clearly better than another. There are currently no patient decision aids for those with systemic sclerosis so this project aims at working together with individuals with systemic sclerosis and health care providers to develop one that can be distributed to members within the community by the Scleroderma Society of Ontario and the Scleroderma Patient-centered Intervention Network.

Maria Gagarine;Andrea Carboni Jiménez
Superviseur universitaire: 
Brett Thombs
Partner University: