Data Ethics & Privacy by Design: Unlocking Health Innovation

Healthcare innovation is a major focus across Canada and the globe. It can be defined as, “activities that generate value in terms of quality and safety of care, administrative efficiency, the patient experience, and patient outcomes.” Efforts are underway to transform health care by leveraging technology and data so that Canadian provinces and territories promote efficient use of limited resources and blaze the trail for new medical treatments and services. This shift has resulted in exciting innovations and the emergence of numerous health-related commercial companies and start-ups across Canada.
Additionally, big data demands, as well as the increasing commoditization and economic value attributed to health and health data is on an upward trajectory with no indication that it will slow down or decrease. For instance, it has been projected that by the year 2025 genomics (personalized healthcare) will constitute the largest data demands in the world surpassing astronomy, YouTube, and Twitter as major generators of big data. The commercialization benefits of data have pushed privacy boundaries and tested consumer trust at new heights, both within Canadian healthcare and elsewhere in the world.
This proposal addresses the need to implement ethics and privacy design to unlock health innovation.

Faculty Supervisor:

Tom Cooper

Student:

Partner:

Hoffmann-La Roche Limited

Discipline:

Sociology

Sector:

Manufacturing; Professional, scientific and technical services; Wholesale trade

University:

Memorial University of Newfoundland

Program: