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People with spinal cord injury (SCI) want to work with researchers as research partners. However, people with SCI have said they do not feel like they have enough knowledge of the research process to be involved, or that researchers have only involved people with SCI in research for the researcher’s gain. To help people learn the knowledge and skills needed for a research partnership, an online course has been created by the North American Spinal Cord Injury Consortium, which is a network of SCI groups and organizations (including the Canadian/American Spinal Research Organization). The University of British Columbia Okanagan is partnering on this research project with the CSRO to understand if completing an online course can increase one’s knowledge and skills for being in a research partnership. Through this partnership, CSRO will gain valuable information for improving future versions of the course, and can take many of the lessons learned to inform the current decision making processes they follow when deciding to fund or not fund research programs.
Heather L Gainforth
Canadian Spinal Research Organizations
Sociology
Professional, scientific and technical services
The University of British Columbia - Okanagan
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