The development of a cholestatic pruritus educational video for those living with primary biliary cholangitis (PBC)

Primary biliary cholangitis (PBC) is a cholestatic chronic liver disease typified by immune mediated damage to hepatic bile ducts. A priority of those with PBC is how to manage cholestatic pruritus (“PBC itch”). At present, there is no FDA approved effective medication to prevent the recurrence or severity of this side effect. Depending upon the severity of itch, this side effect has been associated with decreased HRQoL, depression, anxiety, as well as interrupted sleep leading to fatigue and is known to cause severe sleep deprivation. PBC itch is a debilitating side effect that increases as the liver disease worsens over time thereby representing an unmet patient need.
The Canadian PBC Society (“PBC Society”) is a non-profit organization devoted to improving the health of patients with PBC. The vision is to use an animated video style with carefully chosen animations to maximize interest, engagement, and present evidence-based content in an accessible format for their members (i.e., patients and caregivers). The video will be presented in a format selected by the PBC Society who can distribute it to their members via email as well as host the deliverable on their public website.

Faculty Supervisor:

Puneeta Tandon

Student:

Partner:

Canadian PBC Society

Discipline:

Life Sciences

Sector:

Health and Related Sciences & Technology

University:

University of Alberta

Program: