Patient-Oriented Research in the BC Learning Health System – supporting caregivers for palliative and end of life patients at home

Introduction: Family caregivers for palliative and end-of-life patients play a critical role in providing care in the home. Nearly 75% of people express a wish to be cared for and die at home. However, for caregivers who support this goal, there is a significant gap in adequate and effective support. Patient-oriented research recognizes the importance of engaging patients and families in the research process. Engaging patients and families can lead to the development of a better caregiving support structure. Older adults may need additional supports for activities of daily living. Our study involves the creation, implementation, and program evaluation of the Support for Caregivers Program. We will develop a robust evaluation strategy to measure success and adjust the program as needed. Methods: The first step will be to co-design a logic model with family caregivers, volunteers and hospice staff at 3 hospices in B.C where the Support for Caregivers Program is being implemented (1 in an urban setting, 1 in a rural/urban and 1 in a rural setting). We will develop this strategy through survey data collection methods, online webinars and focus groups and interviews with hospice staff, volunteers, and program evaluation experts.

Faculty Supervisor:

Kelli Stajduhar

Student:

Partner:

Victoria Hospice Society

Discipline:

Life Sciences

Sector:

Health and Related Sciences & Technology

University:

University of Victoria

Program: