Caring for the caregiver: Exploring the “lived” caregiving and self-care experiences of family caregivers of persons with scleroderma during COVID-19

Scleroderma is a rare autoimmune connective tissue disease that damages skin and internal organs. Although many Canadians with scleroderma live at home with supported care from family, seeing their loved ones struggle with reduced participation in activities of daily living caused by disease symptoms often causes caregivers emotional distress in their caregiving role. Given the […]

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