This Phase I proposal is intended to undertake a requirements-gathering and an initial system design for a system that exploits the integrity guarantees of blockchain technology and the high throughput capability of commercial/open source transactional database management systems (DBMS). Although current approaches will be a part of the solution, innovation is required to allow for increased user control over the information stored about them, including the ability to verify its veracity, revoke access as required/desired, delete data when desired, and ensure availability of verifiable access histories to ensure that systems are in regulatory compliance. Blockchain technologies (sometime referred to as distributed ledgers) will provide an important piece of the overall infrastructure necessary to meet the data protection demands mentioned above. Blockchains provide an immutable means of recording information relating to patient preferences about how, by whom, and when their data might be legitimately accessed for a given purpose. Once patient preferences are stored on the blockchain, access rights can be verified against those presets, thereby guaranteeing compliance and transparency. TBC
Ken Barker;Michael John Jacobson
Michael M. Kwakye
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